Signs and Symptoms of Endometriosis You Shouldn’t Ignore
Around one in ten women worldwide suffer with Endometriosis. It’s fairly common, but is still often misunderstood and despite its prevalence, it can take years to receive a diagnosis. This can be after sufferers have experienced long periods of pain and discomfort, and confusion! Recognising the signs and symptoms early could mean getting help earlier and improving quality of life.
The Surrey Park Clinic’s specialist team knows how life-changing an endometriosis diagnosis can be. Our consultant gynaecologists Mr Emmanuel Kalu, Miss Lilian Ugwumadu, and Dr Petya Doncheva offer expert assessment, management, and treatment options matched to you.
We have compiled a list of the most common symptoms, why they occur and when to get help.
What is Endometriosis?
Endometriosis is when tissue similar to the lining of the womb grows outside the uterus in places it shouldn’t, such as on the ovaries, fallopian tubes, bowel, bladder, or pelvic wall. Each month during menstruation, this tissue acts like the uterine lining by thickening, breaking down, and bleeding, but because it has no way to leave the body it can cause inflammation, pain, and scarring.
The level of symptoms don’t always match the extent of the condition as some people with widespread endometriosis have little pain, while others may have severe pain and discomfort. We need to understand the varied signs if there is a chance of early intervention. These can include:
Pelvic pain
The most common symptom of endometriosis is pelvic pain which can occur before, during, or after your period. Unlike the usual period pain, this pain often feels deep, sharp, or stabbing, and can radiate to your lower back or legs.
If your period pain has got worse over time, or lasts for several days, it is worth getting some medical advice before it starts interfering with your usual daily activities. You shouldn’t have to put up with persistent pain!
Painful periods
Many women experience some level of cramping during their period, it’s common. What is not common is for periods that cause you to double over, miss days of work or school, or rely heavily on pain killers. Any of these could be a sign of endometriosis. The pain may start several days before bleeding begins and can linger afterwards. Heavy bleeding and clotting can also accompany painful periods, which can also have an impact on day to day life.
Pain during or after sex
Pain during intercourse is a common (but often overlooked) symptom. This is because endometrial tissue can grow behind the uterus, on the pelvic ligaments, or near the vagina. It can be painful for a few hours after sex too. Some people delay getting medical help with this symptom as they find it difficult or embarrassing to talk about, but it’s important to bring it up with a specialist, nonetheless.
Pain going to the toilet
Endometriosis affecting the bladder or bowel can give you pain during peeing or emptying your bowel, particularly around the time of your period. You may notice blood in your urine or stool at certain times of the month, or you may be constipated, have diarrhoea, or bloating. These symptoms can be confused with IBS or other digestive conditions, which is why seeking the advice of a specialist is so important.
Chronic fatigue
Symptoms connected to endometriosis like ongoing inflammation and hormonal disruption can lead to fatigue. Many women feel drained, even after a full night’s sleep. Fatigue can also be as a result of chronic pain, poor sleep, or heavy menstrual bleeding leading to low iron levels.
If you feel constantly exhausted and are struggling to function, this isn’t just because you have a busy life. It needs investigating!
Fertility difficulties
Endometriosis is one of the leading causes of infertility, affecting up to 50% of women who are struggling to conceive. The condition can block fallopian tubes, affect egg quality, and distort organs like the ovaries. Many people with endometriosis do go on to have successful pregnancies, especially if they’ve had early diagnosis and appropriate treatment.
If you have been trying to conceive for 12 months or more without success (or sooner if you have known symptoms) then you should seek expert fertility advice.
Abdominal swelling and bloating
Have you heard the term ‘endo belly’? This is what many people with endometriosis experience with sudden and severe bloating that can make the abdomen appear swollen. This can cause physical pain or discomfort, as well as emotional upset (particularly when your clothes feel tight and uncomfortable). Occasional bloating is common – it’s when it becomes regular and painful that you should get medical investigation.
Other possible symptoms
There are other symptoms that sufferers may experience including:
- Lower back pain
- Nausea or vomiting during periods
- Irregular bleeding (or spotting) between periods
- Pain when standing or walking for prolonged periods
- Difficulty going to the toilet
Diagnosis is always needed as some of these symptoms can be linked with other conditions. You may need and ultrasound and sometimes a laparoscopy to confirm.
Why early diagnosis matters
Endometriosis is a progressive condition which means it can get a lot worse over time. An early diagnosis and treatment can prevent complications such as severe pain, fertility issues, and adhesion problems (where organs stick together because of scar tissue). Just as importantly, treatment that starts as early as possible can improve day to day comfort, and have a positive impact on emotional wellbeing.
So many people suffer in silence and believe their pain is just one of those things, or even normal. It’s not. If your symptoms are interfering with your life, then you should talk to a healthcare professional straight away.
At The Surrey Park Clinic, we provide support for women’s health including the diagnosis and treatment of endometriosis. Along with support from our team, there are many support groups you may find helpful if you are undergoing investigations or are diagnosed with endometriosis, including Endometriosis UK, Royal College of Obstetricians and Gynaecologists, and NHS.



